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Basically went in and had my blood platelet Levels checked which where good, but that was not the full reason for the appointment today. (Has to do with my Immune System and how effective it is at fighting off infections and such)

I came in and we (Me & My Mom & The Main Doc of the ones I see) talked about options on my Meds, as I am presently on one Lung Med at 1500mg (3 x 500mg pills) and a (50mg Lung Med) both of which lower my Immune System which I cant stay on either in the same fashion as I cant stay on Steroids the side effects and longer term dangers.

So now Im going to have to see about those "Transfusions" again and go in for (4 Times, Once a week)and then if all goes well, (Once, every four months) to try to stop having the need for both Steroids and the secondary Lung Med.



Thats going to mean one of my days off for between 2 - 4 hours I get to sit and do nothing while taking an IV Infusion in the back of my hand for however long I have to do them. Possibly MY WHOLE LIFE.......iof it is needed.



TYPO: 3x 500Mg was supposed to be (6x 500Mg .= 3000Mg of that one Lung Med.) xp