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So, over the past three months or so, I've been having these odd sort of episodes every few weeks or so that consist of my body violently flinging about, falling, more shaking, and then just being stuck. Sometimes with a minute or so of being unconscious, other times not.
Had went into emerg before, doctor on call that night dismissed it as a fainting spell, for me to "eat more" [I've been grossly underweight my entire life, despite how much I try to take in - the only time I've manage to have a 'normal' BMI was when I was mis-prescribed anti-psychotic meds before the narcolepsy was diagnosed, while being on birth control pills.]
Another occurred this afternoon, but my brother was home and heard me fall, as well as my body thunking against the floor repeatedly. I had a glass of water in my hand, hit my head on the stove, came to dazed and soaking wet with him telling me to wake up.
Went into emerg, had blood taken, then sat for seven hours. Very loud, very busy. Got put in a bed in the isolation ward, as the emergency ward was packed -- which in the broad scheme of things is okay, and good, as was quieter. But just prior, had been called into emerg, and had triage sheet in hand. Nurse earlier had asked me to remove my gloves to look at my hands / nail color --- actual reason, as the triage sheet reveals, was to check for slash marks neutral There were none, as I wear the gloves to try to help with wrists aching [along with all my other joints in my body, but without gloves, I can't use the computer for more than ten minutes due to my hands clawing up].
Anyway. The doctor, when I saw her, was actually very nice, and was actively listening to what I was saying, rather than glancing through chart for flags / zoning out on me. I tend to ramble when I talk -- it isn't something that I'm aware of when I'm talking, but I realize after I have rambled and the doctor has a glazed look in their eyes or is looking at me as if I'm crazy... yeah sweatdrop
Anyway. Very nice lady :]
She knows my [new to me as of four months ago] family doctor, and told me that my tests results would go to her, to help with the sorting out my body.
As well, I now have a CAT scan booking through outpatient, to see if there is anything physically changed with my brain the past seven years or so, as I've had massive increase in migraines, loss of math skills, severe decrease in concentration, etc, etc, but have had my requests in past for imaging to be done turned down, being told it was 'just stress' or 'just the narcolepsy'.
I can't even begin to describe how good it feels, to have someone actively listen, and be wiling to send me for a CT scan, after having tried to talk to my different family doctors, my sleep specialists, the psychiatrists I've been sent to, to get me referred to a neurologist or just flat out sent for a CAT scan.
While the CAT scan may show nothing at all in my head --- at least this way I will know.
Granted, what I would really like to have done is an fMRI study of my brain through awake / dipping into REM, but maybe the next five years, I'll manage to convince someone finally to send me for one. [Bloody hell, ten years of trying to get a test performed? Gah. But then again, five years of trying to convince them to send me for a CAT scan....]
Now, to eat my ice cream, and curl up in blankets, I'm really tired and migraine from the noise and lights.
 amalyn · Wed Aug 06, 2008 @ 04:05am · 0 Comments |
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